Autistic adults are not just subjects of research. Their experience helps decide which questions truly matter in daily life.
- Mental health and better support came first.
- Diagnosis and services mattered more than finding a ‘cure’.
- Research is stronger when autistic people help shape it.
Questions you can take with you
You do not need to become an expert. These questions can help you talk with a professional or support provider.
- Were autistic people involved in choosing the question?
- Will the result improve daily life?
- Are different support needs represented?
Want the study details?Sample, method and evidence type
- Participants
- 225
- Country
- Scotland
- Approach
- Participatory
Read on for what was studied, what was found and what remains uncertain.
The question behind the study
Research budgets are choices. The team asked 225 autistic adults in Scotland which questions would make the greatest difference to their lives.
Autistic and non-autistic researchers worked together to develop the survey, an important feature when the subject is whose priorities count.
A different research agenda
Participants prioritized mental health and wellbeing, identifying and diagnosing autistic people, support services, non-autistic people’s knowledge and attitudes, and issues affecting autistic women.
Topics that have historically attracted substantial scientific attention — genetics, biological aspects, causes and interventions — ranked lower for this sample.
Why this changes our compass
Autism Research Compass uses these findings as an editorial signal: daily life, health, rights and access deserve sustained attention, not occasional coverage.
One survey cannot speak for every autistic person. Priority-setting should be repeated across countries, ages, communication profiles and people with intellectual disability.
Limitations to keep in view
- The findings reflect 225 adults in Scotland, not a global consensus.
- People able to complete the survey may not represent those with higher support or communication needs.
- Priorities can change over time and by local service context.
What are the autism research priorities of autistic adults in Scotland?
Cage E, Crompton CJ, Dantas S, et al.
Autism · 2024
This article provides general information and does not replace individualized medical, psychological or educational advice.