- Mental health and wellbeing ranked first.
- Diagnosis, services, public understanding and issues affecting autistic women completed the top five.
- Genetics, causes and treatments ranked among the lowest priorities in this group.
- Participants
- 225
- Country
- Scotland
- Approach
- Participatory
The question behind the study
Research budgets are choices. The team asked 225 autistic adults in Scotland which questions would make the greatest difference to their lives.
Autistic and non-autistic researchers worked together to develop the survey, an important feature when the subject is whose priorities count.
A different research agenda
Participants prioritized mental health and wellbeing, identifying and diagnosing autistic people, support services, non-autistic people’s knowledge and attitudes, and issues affecting autistic women.
Topics that have historically attracted substantial scientific attention — genetics, biological aspects, causes and interventions — ranked lower for this sample.
Why this changes our compass
Autism Research Compass uses these findings as an editorial signal: daily life, health, rights and access deserve sustained attention, not occasional coverage.
One survey cannot speak for every autistic person. Priority-setting should be repeated across countries, ages, communication profiles and people with intellectual disability.
Limitations to keep in view
- The findings reflect 225 adults in Scotland, not a global consensus.
- People able to complete the survey may not represent those with higher support or communication needs.
- Priorities can change over time and by local service context.
What are the autism research priorities of autistic adults in Scotland?
Cage E, Crompton CJ, Dantas S, et al.
Autism · 2024
This article provides general information and does not replace individualized medical, psychological or educational advice.