Topic

Research & rights

Participation, consent and the priorities autistic people want research to address.

Research & rightsQualitative study using surveys and interviews

A good life needs your own say

Forty-two autistic teenagers described what matters to them. Their answers are a starting point for listening, not a script for anyone’s life.

An autistic teenager chooses note cards about their own goals while a trusted adult listens nearby in a library
Research & rightsSystematic review of school-based participatory research

Being heard at school should lead somewhere

A review of 24 projects found many ways autistic pupils can take part in research. The missing piece was often what adults did next.

A young person chooses tactile cards at a classroom table while an educator listens nearby
Research & rightsModified Delphi consensus study

A form cannot tell your whole story

Autistic women and professionals said the questionnaires they reviewed still leave things out. A score can start a conversation; it cannot decide who you are.

A woman looks at a questionnaire at home while a friend listens nearby